Supporting Women, Girls & Those Assigned Female at Birth Living with Endometriosis

Endo Warriors Aotearoa is a grassroots charity led by people with lived experience. We provide compassionate support for those living with endometriosis and deliver free menstrual and endometriosis education in schools and community groups, because endometriosis is not just a period illness.

Our Mission

To support and empower individuals living with endometriosis and fight period poverty. We provide education, advocacy, and resources while promoting greater access to healthcare for those affected by these conditions.

Our Values
Endo Warriors Aotearoa is guided by compassion, courage, and community. We believe in learning and growing together, respecting the dignity of every person, and supporting each other with care and hope. Through connection and teamwork, we create positive change for those affected by endometriosis and period poverty.

Our Impact

We offer compassionate peer support, accurate information, and a vibrant online community for those living with endometriosis. We deliver free menstrual and endometriosis education workshops in schools and local communities, distribute free menstrual products (including reusable options), and advocate for better health care across Aotearoa. Every action ensures no one faces endo or period poverty alone.

Challenging stigma and system gaps with free education, support, and community action.

Featured Campaign

Let's Be Heard: Rewrite the National Guidelines for Endometriosis

Endometriosis affects more than 1 in 7 women, girls & those assigned female at birth in Aotearoa, yet national care guidelines haven't been updated since 2020

That means thousands are still being dismissed, misdiagnosed, or left without the support they need. Endo Warriors Aotearoa is calling on the Ministry of Health, Te Whatu Ora, and other key decision-makers to change this.

We've launched a petition and submitted a community-led review of the guidelines and we need your voice to help drive it forward.

8–10 Year Wait
People face years of pain and dismissal before getting a diagnosis, with Māori, Pasifika, disabled, and gender-diverse communities waiting even longer.

Outdated Guidelines
The national guidelines (last updated in 2020) are not enforceable, lack equity planning, and fail to protect patients.

Limited Care Options
Current care focuses on a narrow set of treatments, leaving people without the full range of support needed for pain relief, quality of life, and long-term wellbeing

Lack of Inclusivity
The guidelines overlook the needs of Māori, Pasifika, disabled, and gender-diverse people, widening health inequities.

Together, we can demand the recognition, care, and justice our community deserves. Sign today

What We Do

Our comprehensive approach addresses the full spectrum of needs in our community, from education and support to advocacy and direct relief.

We're Campaigning for Change

As part of our advocacy

Making your voice heard. We're actively working to update national guidelines, improve healthcare access, and create systemic change for better endometriosis care.

Policy advocacy
Healthcare reform
National guidelines
Community action

Menstrual & Endometriosis Education
Breaking the Cycle of Shame

Led by lived experience, we deliver free menstrual and endometriosis education in schools and communities. Our mahi ensures everyone has access to accurate, inclusive, and shame-free information about their bodies — and highlights that endometriosis is not just a “period illness.”

Free school workshops
Community education sessions
Educators with lived experience
Age-appropriate and inclusive content

Endometriosis Support
Led by Lived Experience

Compassionate, practical support from people who get it. We offer advocacy, resources, and a safe community for those navigating life with endometriosis (mate kirikopu).

💛 Peer support connections
💛 Easy-to-access resources
💛 Advocacy tools and guidance
💛 Emotional and whānau suppor

Period Poverty Relief
Access is a Right, Not a Privilege

No one in our community should go without period care. We provide access to affordable, reusable, and free menstrual products through schools, community partners, and direct support, because period care is a basic need.

Free period products
School and community partnerships
Local distribution
Emergency support

Community Impact

Building Stronger Communities

Through partnerships and grassroots action, we're building a network of support that reaches every corner of Aotearoa New Zealand.

Local partnerships
Volunteer programs
Community events
Awareness campaigns

Shop to Support

Every Purchase Makes a Difference

Browse our selection of period care products and educational resources. Every purchase directly supports our mission and helps fund our programs.

Quality products
Educational materials
Mission-driven
Community support

Every dollar helps someone access education or period care.

Our Founder

Meet the heart behind Endo Warriors Aotearoa

Yessenia Sandoval -She/They

Founder & Charity Director

"La unión hace la fuerza." - Unity makes strength.

Born in Wellington to Chilean indigenous heritage, Yessenia's journey with endometriosis spans over two decades. After years of feeling unheard and isolated, she founded Endo Warriors Aotearoa in February 2020.

From her father Jorge, a political refugee from Chile, she learned the importance of advocacy and aiding others. This foundation of strength and determination drives her mission to ensure no one faces endometriosis alone.

Through personal battles with endometriosis, PCOS, infertility, and multiple surgeries, Yessenia understands intimately the struggles faced by Women, Girls & Those Assigned Female at Birth living with these conditions.

All sales help fund our education & free period product programs.

When people ask about my hobbies, I wish I could say pottery or hiking… but the truth? It’s a full-time gig managing endo. Heating pad connoisseur. Midnight Google researcher. Professional “least painful position” tester.

Do any of these sound like you? Share the one that fits and tag us! and scroll to the very last slide to see Yessenia (our founder) share hers.

Want to join in? Write your own? Screenshot the blank slide in our stories, fill in your own “endo hobbies,” and share it on your page, and don’t forget to tag @endowarriorsaotearoa so we can see and share yours too

#EndometriosisHumour #ChronicIllnessLife #MateKirikōpū #EndoWarriors

The average wait time for an endometriosis (mate kirikopu) diagnosis in Aotearoa is still 8–10 years. That’s a decade of pain, missed school, lost jobs, broken whānau moments, and mental health struggles. We all know how hard that journey is.

But did you know Māori, Pasifika, disabled, and gender-diverse people often wait even longer?

The current guidelines talk about “equity” — but they offer no plan to achieve it. No protections. No clear actions. Just words on a page.

That’s not equity. That’s empty promises.

We deserve guidelines that actually work for all of us — not just the privileged few. Guidelines that are enforceable, inclusive, and co-designed with the people who live this reality every day.

✍️ Sign the petition today and help us fight for real change: Link In Bio

#EndoPetitionAotearoa #EquityMatters #MateKirikopu #WeDeserveBetter #EndoJustice

We’re looking for 8–10 amazing people across Aotearoa to help us take our petition offline and into schools, unis, tech campuses, and local communities.

Your role?
💌 Collect handwritten signatures for our petition demanding enforceable, inclusive, equity-based endometriosis guidelines.
📣 Hold a small stall, table, or event in your space — we’ll provide everything you need for the table.

What you’ll get:
For you: An EWA Endo T-shirt (yours to keep), Endo Warrior stickers, an Endo ribbon pin, and a $30 supermarket voucher when you return your sheet.

To use: a full kit with posters, printouts, lollies to give out, pens and clear guidance.

Please note we only have limited kits and shirts to give away. We’ll do our best to spread them fairly across regions. If you’re happy to help without them, there’s a space to let us know in the application form.

This is your chance to stand up for change in your own community and be part of something historic.

Apply now via the link In Bio
Every signature matters. Every voice adds power.

#EndoPetitionNZ #EndoWarriorsAotearoa #WeDeserveBetter #endometriosisawareness

We asked why you’re signing the petition.

Every signature is more than a name, it’s a story, a demand for change, and a voice saying we will not be ignored.

This petition isn’t just about updating words on paper. It’s about lived experience, equity, and care that works for all women, girls, and those assigned female at birth.

✍️ Add your voice. Sign the petition today:
https://our.actionstation.org.nz/petitions/people-with-endometriosis-deserve-better-demand-review-of-the-national-guidelines

Let us know your why in the comments below

#EndoPetitionNZ #MateKirikopu #WeDeserveBetter #EndoJustice #EndometriosisAwareness

Huge thanks to @meandosesbrewery for choosing Endo Warriors Aotearoa as their August quiz night koha recipient!

Through your generosity and the support of everyone who came along, a total of $845.40 was raised. Every dollar goes directly into our mahi, delivering free period and endometriosis education, gifting reusable period items, and supporting those living with mate kirikopu (endometriosis).

This kaupapa reminds us how powerful community is when we come together.
Ngā mihi nui to the Mean Doses whānau and every quiz team who made this happen!

#EndoWarriorsAotearoa #communitysupport

No national plan.
No urgency.
No equity.

That’s the reality of endometriosis care in Aotearoa. The 2020 guidelines are vague, optional, and unenforced leaving women, girls, and those assigned female at birth to wait up to a decade for answers.

📌 No timelines for diagnosis, leaving all women, girls, and those assigned female at birth waiting years.
📌 No school-based education or youth pathways.
📌 No clear funding for surgery, pain management, or mental health care.
📌 No protections for Māori, Pasifika, disabled, and gender-diverse communities.

This isn’t just neglect, it’s systemic failure. Endometriosis is a whole-body illness that impacts fertility, nerves, bowels, bladder, and mental health. Lives are being derailed while the Government stalls.

We need a national action plan backed by enforceable guidelines, proper funding, and accountability at every level. Anything less is unacceptable.

✍️ Sign the petition today and help us demand the system our communities deserve. Petition link in bio

#EndoPetitionNZ #WeDeserveBetter #MateKirikopu #SystemicChange #EndometriosisAwareness #healthequitynow

Myth:
Endometriosis only affects people one or two days a month.

Fact:
Endometriosis is a whole-body, chronic inflammatory illness. Symptoms don’t just show up during a period, they can affect daily life all month long.

For some, it’s pain every single day. For others, it comes in waves. Some may feel little or no pain but experience fatigue, infertility, or organ damage. Endo can also cause:
✨ Pain during sex or intimacy
✨ Painful bowel motions or urination
✨ Nerve pain and back pain
✨ Headaches and migraines
✨ Overwhelming fatigue

This is why calling endometriosis “just bad periods” is so harmful. It minimises a complex disease that impacts women, girls, and those assigned female at birth in every part of their lives from school and work to relationships and mental health.

The current guidelines ignore this full-body reality. We are demanding guidelines that reflect lived experience, protect patient rights, and recognise endometriosis as the serious, life-changing disease it is.

✍️ Sign the petition today: Link In Bio
#EndoPetitionNZ #MateKirikopu #EndometriosisAwareness #WholeBodyIllness #EndoIsReal #EndoWarriorsAotearoa #wedeservebetter

@radionewzealand has highlighted why regular reviews and real choice are so important, contraception needs change over time, side effects can build, and risks like blood clots or mood changes must be checked. People deserve informed consent, not one-size-fits-all prescriptions.

For those with endometriosis (mate kirikopu), this is even more urgent. Hormones can help some, but they do not treat the disease itself and for many they cause harm or don’t work at all. Yet hormones are still pushed as the default, leaving people without access to the full toolbox of care.

That’s why our petition calls for enforceable guidelines that protect informed consent, require regular reviews, and give equal visibility and ensuring equal visibility and funding for non-hormonal care offered early, explained clearly, and documented in every care plan alongside hormonal options.

It’s time for care that fits the person, not just the system.

✍️ Sign and share the petition today: Link In Bio

Head to @radionewzealand insta to see link for this articel

#EndoPetitionNZ #MateKirikopu #InformedConsent #RealOptions #endowarriorsaotearoa

“Try the pill. Try another one. Try an IUD. Try more hormones.”
That’s the reality for too many women, girls, and those assigned female at birth with endometriosis.

The current 2020 guidelines still frame hormonal suppression as the “first-line” treatment. That means for many, it’s the only option ever offered — even when the side effects cause depression, bone loss, or make the pain worse.

Informed consent is often missing. Too many are put on the pill or an IUD without clear explanations, without a real conversation about risks, and without being told that hormones don’t treat endometriosis itself. They can mask symptoms. They can delay diagnosis. And they don’t work for everyone.

Our Guidelines Review calls for this to change:
✔️ No more “one-size-fits-all” hormone-first approach.
✔️ Equal visibility for non-hormonal care.
✔️ Shared decision-making at the centre, patients must have the right to say no.
✔️ Recognition that hormonal contraception does not cure endometriosis and should not be the default for youth or anyone who doesn’t want it.

Hormones can be a choice. They should never be the only choice.

✍️ Sign the petition to demand guidelines that protect consent and offer real treatment options: Link In Bio

#EndoPetitionAotearoa #HormonesArentACure #MateKirikopu #InformedConsentMatters #EndoOptionsNow #WeDeserveBetter

Myth:
Using tampons can cause endometriosis.

Fact:
There is no scientific evidence that tampon use causes endometriosis. This myth only adds to the shame, stigma, and misinformation that people already face when living with endo.

Endometriosis is a complex, whole-body disease that deserves real answers and proper care, not blame, dismissal, or old wives’ tales. That’s why our petition is calling for updated national guidelines that are evidence-based, trauma-informed, and shaped by lived experience.

Let’s stop the myths, start the kōrero, and push for the change our community needs.

✍️ Sign the petition today: Link In Bio

#EndoPetitionNZ #MateKirikopu #MythBustEndo #EndoWarriorsAotearoa #EndometriosisAwareness #WeDeserveBetter

It’s only Tuesday and somehow I’ve already lived three weeks in one.
The overwhelm is real. The exhaustion is loud.
And the world feels heavier every day.

Whether you're grieving, raging, flaring up with endometriosis, dissociating, or just trying to survive your inbox
I see you

Rest if you need to
Cry if you need to
Switch off if you need to
But don’t forget, you’re not alone in this

Some of us are holding the line
Some of us are holding each other
Some of us are just holding on
And that’s enough

If you’re struggling with endo or burnout, drop a yellow heart in the comments
Let’s remind each other we’re not doing this alone

#EndometriosisAwareness #ChronicFatigue #EndoCommunity
#MentalHealthMatters #chronicillnesslife #ItsOnlyTuesday
#PaceYourself #EndoWarriorsAotearoa

We don’t blame gynaecologists. They are working in a system that was never set up to meet the needs of women, girls, and those assigned female at birth living with endometriosis.

Many of them face the same roadblocks we do:
⚠️ No enforceable guidelines to follow
⚠️ No dedicated funding for endometriosis services
⚠️ Not enough specialists and years-long waitlists
⚠️ Long hours, under-resourced clinics, and impossible pressure

The truth is, our current guidelines don’t protect anyone. They leave patients misdiagnosed, dismissed, and in pain. But they also leave gynaecologists unsupported, underfunded, and unable to provide the care they want to give.

This petition is a chance to change that. Clear, enforceable guidelines would:
✔️ Protect patients from dismissal and delay
✔️ Support gynaecologists with real pathways and accountability
✔️ Push the Government to invest in training, services, and care

This isn’t just about holding doctors and gynaecologists accountable it’s about fixing a system that has failed everyone.

Sign the petition today. Link in Bio
#EndoPetitionNZ #MateKirikopu #WeDeserveBetter #SystemicChange #EndoAwareness #HealthEquity

Our Youth Advisory Board are young, passionate advocates working alongside Founder Yessenia Sandoval @yesseniafightsendo and MP Benjamin Doyle (they/them), @benjamin.doyle.mp the official sponsor of our petition to Parliament.

They are at the heart of this kaupapa, helping to rewrite Aotearoa’s outdated endometriosis guidelines so they reflect lived experience, equity, and the needs of the next generation.

From leading kōrero on schools and youth rights, to bringing fresh ideas into our petition campaign, these rangatahi are shaping a future where endometriosis care is inclusive, compassionate, and effective.

We are so proud to have their voices driving this mahi forward.

🖊️ Sign the petition today: Link In Bio

#EndoYouthVoices #EndoPetitionNZ #EndoWarriorsAotearoa #MateKirikopu #YouthLeadership #EndoJustice

Endo starts young but the guidelines don’t.
The current NZ endometriosis guidelines mention youth once. Once.

There’s no guidance for schools. No diagnostic pathways for teens. No tools for school nurses, parents, or teachers. No cultural safety for Māori or Pasifika rangatahi. And zero support for youth who don’t respond well to hormonal meds.

Here’s what young people are asking for:
✨ Inclusive, gender-diverse language
✨ Support from school nurses and teachers
✨ Non-hormonal and holistic options
✨ Culturally relevant education
✨ Clear, accessible diagnosis pathways

🧡 Our Youth Advisory Board has been clear: rangatahi deserve better than silence. That’s why this petition centres their voices.

✍️ Add your name today so the next generation doesn’t wait another decade for care. Link in bio

#EndoYouthVoices #EndoPetitionAotearoa #PeriodHealthRights #MateKirikopu #YouthDeserveBetter

Myth
Having endometriosis means you can’t have a satisfying sex life.

Fact
Many women, girls, and those assigned female at birth with endometriosis can have a fulfilling sex life with the right management and support. Open communication with partners, access to effective medical treatment, and exploring different sexual practices can all help.

But here’s the problem — the current national guidelines don’t even mention sex, intimacy, or the emotional impact of dyspareunia (painful sex). That silence leaves thousands of people without the support or acknowledgement they deserve.

Our petition is calling for updated, enforceable guidelines that address the full reality of endometriosis — including intimacy, relationships, and quality of life.

✍️ Sign the petition today. Let’s make sure no one’s pain, pleasure, or relationships are left out of the picture. Link in Bio

#EndoPetitionNZ #MateKirikopu #EWA #EndoWarriorsAotearoa #Dyspareunia #EndometriosisAwareness #SexualHealthMatters

Have you ever felt pressure to hide the way you manage your symptoms?
What would it feel like to finally let that go?

Take a deep breath.
Rest is resistance.
Your healing doesn’t need anyone else’s approval.

Give yourself permission to pause, to heal, and to choose the tools that work for you.

#EndoWarriorsAotearoa #PermissionToRest #MedicalCannabisNZ #CannabisForEndo #ChronicPainSupport #BreakTheStigma #EndoLife #selfcompassionsunday

We have seen so much stigma around medical cannabis but @hellpizza
just made it impossible to ignore. Their new “Doobious” pizza comes not just with pork and onion rings but a custom grinder and a baggie of herbs. It is quirky, hilarious, and smart. Hell’s chief says medicinal cannabis use in Aotearoa is booming but stigma and cost are still keeping it underground.

This campaign by is not just about pizza. It is a nudge, no, a full-on shove to say the conversation about medical cannabis is long overdue. Between people buying illegally because prescriptions are too pricey and growers exporting while Kiwis go without, that disconnect needs to burn away.

For our community this hits close to home. Endometriosis affects 1 in 7 women, girls and those assigned female at birth and for so many of us medical cannabis has been life changing. It helps manage pain when other meds fail but the stigma and cost make it inaccessible for too many.

IYKYK how much we love Hell Pizza and today it is not just for the support we have had from them in the past but for sparking the kōrero we need.

Cheese, crust, and cannabis kōrero finally on the same plate.

#medicalcannabisnz #endocommunity #hellpizzanz #LetsTalkCannabis
#kōreromatters

This term we gifted over $15,000 worth of FREE reusable period items (retail value) in Wellington and Porirua. Not bad for a small grassroots charity.

Thanks to grant funding we were able to provide period underwear, reusable pads, cups, period togs, and wetbags to people in our community.

Period poverty is not just a financial issue. It is an environmental one too. Every reusable item replaces hundreds of disposables that would otherwise end up in landfill. That means less waste, less plastic, and more long-term solutions for both people and our environment.

This is community care in action.

#PeriodEquity #Wellington #Porirua #EndoWarriorsAotearoa #reusableperiodproducts

When everyday things like showering or getting off the sofa feel impossible, people don’t see it, because on the outside you “look normal.
#endoawareness #endometriosis #EndoPetitionNZ #wedeservebetter

At Endo Warriors Aotearoa, we are not just another charity.
We are a movement fighting for menstrual health justice and better support for those living with endometriosis. Everyone deserves education, period care, and compassionate support. No exceptions.

Endometriosis Isn’t “Just a Bad Period” 1 in 7 women, girls, and those assigned female at birth live with endometriosis a whole-body condition causing crippling pain, fertility struggles, and major life disruption. Many face years of medical gaslighting before diagnosis. Our workshops teach body literacy, pain management strategies, and self-advocacy tools to help people get the care they deserve.

Period Poverty is a Justice Issue: Periods aren’t a choice, so why should period care be a luxury? Too many face shame, stigma, and financial barriers.
We provide free reusable period products like menstrual cups and period underwear while educating communities on sustainable solutions.

What Makes Us Different
✅ Holistic Care and Education: Workshops, advocacy, and product access practical tools for lasting change
✅ Grassroots Driven: Founded and led by those with lived experience of both endometriosis and period poverty
✅ Sustainable Solutions, Not Band-Aids: Long-term impact with reusable products and empowering education
✅ Breaking the Silence: We challenge harmful myths and normalise kōrero about menstrual health and chronic pain
✅ Small but Mighty: Every dollar goes directly into period care and education — no big overheads, just real impact

Help Us Push for Systemic Change Sign the petition: We are calling for an urgent review of the outdated 2020 endometriosis guidelines

Share the petition: Your voice helps amplify the call for better care across Aotearoa - Link In Bio

Endometriosis and period poverty? Not the same thing and we’re tired of pretending they are. At Endo Warriors Aotearoa, we fight for both, because no one should be left bleeding without pads or suffering in silence just to be believed.

#EndometriosisAwareness #EndoWarrior #Endometriosis #PeriodPoverty #MenstrualEquity #ChronicIllness #1in7 #HealthEquity #MenstrualHealth
#ChronicPain #EndoCommunity #InvisibleIllness

Only a glimpse of the many stupid spends all while endometriosis remains unfunded

3 billion on helicopters and planes. These upgrades were justified as fixing “embarrassing” optics while health continues to be neglected.

671 million wasted on ferries that never arrived. Hundreds of millions gone with nothing to show for it.

500,000 spent reviewing hairdresser rules. Half a million dollars to decide hairdressers could serve a cup of tea and allow dogs inside.

200 million committed to new oil and gas drilling. This is not just a misallocation of resources. It is actively rolling back environmental protections and funnelling public money into fossil fuel expansion.

These are all examples of money being poured into vanity projects, cancellations, trivialities, or backwards policies — while basic healthcare needs like endometriosis get $0.
No clinics.
No updated guidelines.
No action plan.

Endometriosis affects one in ten women girls and those assigned female at birth. More than 120,000 people in Aotearoa. The average diagnosis delay is ten years. In that time people live with chronic pain, miss school or work, face mental health struggles, and often suffer lasting effects including infertility, bowel or bladder complications, nerve pain, and damage to surrounding organs. For many, this means ongoing pain and challenges that never fully go away. Many are dismissed and told their pain is normal.

The 2020 guidelines are outdated, informal, and ignored. They do not guarantee diagnosis or treatment timelines. They do not reflect lived experience. They do not protect you, our youth, Māori, Pasifika, disabled, rainbow, or rural communities. For those in rural areas the barriers are even higher. Travel costs, lack of local specialists, and long waiting lists make access to care even harder.

Billions are being wasted on optics and projects that deliver nothing. Endometriosis gets nothing. That is the real embarrassment.

Sign our petition today - Link In Bio

Share this post so the Government cannot keep ignoring us.

#Endometriosis #EndometriosisAwareness #ChronicIllness #PeriodHealth #EndoPetitionNZ #StupidSpends

Endometriosis isn’t “just a period problem.” It’s a complex, whole-body disease that can affect nearly every system not just the reproductive organs.

It has been found in the lungs, diaphragm, bowel, bladder, brain, and even the nerves.
It causes chronic pain, fatigue, nerve damage, and organ dysfunction.
It impacts daily life, education, work, relationships, and mental health.

Yet the healthcare system still frames it as only a reproductive illness. That narrow view leaves thousands undiagnosed, dismissed, or misdiagnosed for years.

Endometriosis is not confined to one part of the body. It is a systemic disease that deserves systemic change.

We need guidelines that reflect reality, not outdated myths.
✍️ Add your name to demand better care. - Link in Bio

#EndoPetitionNZ #MateKirikopu #EndometriosisAwareness #WeDeserveBetter

Endometriosis (mate kirikopu) doesn’t always come with a cast, a crutch, or a label.
It’s vomiting from pain.
It’s missing school, work, and life.
It’s fatigue that knocks you out like the flu.
It’s hormonal side effects, surgeries, flare-ups — and a health system that still shrugs.
You might not see it. But for thousands of us, it’s a daily battle.
The current guidelines ignore this reality — and that needs to change.

🖊️ Sign the petition today - Link In Bio

#EndoPetitionAotearoa #InvisibleIllness #UpdateTheGuidelines #MateKirikopuMatters #endoawareness

This is just a small list of what’s wrong with our current endo guidelines. They’re outdated, not enforceable, and leave out youth, rainbow communities, disabled people, and those in rural areas.
We deserve guidelines that reflect real life and create real change.
Link in bio to sign the petition today.
#endopetitionnz #MateKirikopu #endoawareness #wedeservebetter #endometriosis #endowarrior #newzealand🇳🇿 #aotearoa

At Endo Warriors Aotearoa, we don’t just raise awareness. We walk alongside people navigating schools, doctors, and the health system.

💛 We’ve helped students with letters to their schools and universities. “The letter you wrote changed everything. My daughter finally felt seen, the school took her pain seriously, and they offered more support and flexibility. She doesn’t feel like she has to hide anymore.”

💛 We’ve supported trans men and gender-diverse people advocating for care. “As a trans man with endo, I’ve struggled to get the right support. It’s so rare to see an organisation that even acknowledges people like me. Just having someone listen to me on the phone and understand meant so much and the advocacy tips and follow-up support made a real difference."

We’ve created free resources with practical tools: questions to ask, symptoms to track, and how to speak up without fear.

You shouldn’t have to face endo alone.
And you shouldn’t have to explain it all from scratch every single time.

👉 Have you ever needed backup at school or in a medical appointment? Visit the Resources page on our website or reach out to us directly via DM or email.

And tag a friend who could use the support.

#EndoAdvocacy #SchoolSupport #EndometriosisResources #PatientRights #EndoWarriorsNZ

Endometriosis is one of the most painful conditions a person can live with yet in Aotearoa it’s still misunderstood, dismissed, and underfunded.

Research shows the pain of endometriosis can be worse than a heart attack, kidney stones, appendicitis, or childbirth. And yet millions of women, girls, and those assigned female at birth are told to push through school, mahi, and daily life as if it’s “just a bad period.”

The truth? Endo is NOT just a period illness. It’s a chronic, inflammatory disease that can cause infertility, fatigue, organ damage, nerve pain, and lifelong complications. It can impact the bowels, bladder, lungs, and more.

So why are we still:
❌ Waiting 8–12 years for a diagnosis
❌ Dismissed with Panadol and hormonal birth control as the “only” options
❌ Told to “get pregnant” as a treatment
❌ Gaslit by the very system meant to protect them

We deserve better.
We deserve clear, enforceable, trauma-informed guidelines that put lived experience at the centre.

That’s why we’ve launched a national petition, backed by MP Benjamin Doyle @benjamin4kirikiriroa calling on the government to urgently review and formalise the broken 2020 endometriosis guidelines.

✍️ Add your name today.
📢 Share it with your friends and whānau.
💛 Demand the change our community has been denied for far too long.
📢 LINKS IN BIO

#EndoPetitionNZ #MateKirikopu #EndoWarriorsAotearoa #WeDeserveBetter #ChronicPainJustice

Endometriosis pain is not “just a bad cramp.”
It doesn’t stop at the pelvis it can feel like stabbing, burning, electric shocks, or that you're being punched from the inside.

It shows up everywhere periods, ovulation, sex, bowel movements, urination…sometimes randomly. It’s more than cyclical pain. It’s systemic, often paired with overwhelming fatigue, nausea, bloating, and even changes in mood or brain function.

That’s because endometriosis is a whole-body illness, triggering systemic inflammation, immune dysfunction, altered metabolism, and even changes in gene expression in the brain that can worsen pain and mental health.
PubMed

It affects daily life making work, study, sleep, and simply standing up feel impossible. The wait for a diagnosis often stretches nearly 10 years on average, deepening the frustration and invisibility.

Endometriosis is complex, persistent, deeply hidden, and undeniably real.

How would you describe your endo pain to someone who’s never felt it?

#EndometriosisPain #ChronicPainNZ #EndoAwareness #WhatPainFeelsLike #EndoIsReal

Endometriosis affects 1 in 7 women, girls, and those assigned female at birth in Aotearoa, yet the national guidelines haven’t been updated since 2020, and they were never enforceable. That means thousands are still being dismissed, misdiagnosed, or left without care.

📌 It takes 8–12 years on average to be diagnosed.
📌 Behind every delay is someone missing school, work, or whānau time to pain.
📌 Every delay means more lives derailed, more futures stolen.

This petition is backed in Parliament by MP Benjamin Doyle @benjamin4kirikiriroa and it’s how we demand real change.

✍️ Sign today. Share today. Speak up today. Link in bio
#EndoPetitionNZ #WeDeserveBetter #matekirikopu #endowarriorsaotearoa #Endometriosis

✨ Fundraiser Winners Announced! ✨

A massive THANK YOU to everyone who supported our EWA fundraiser 💛 Some of you bought a lot of tickets, and while we wish we could give everyone a prize, please know your support means the world to us and helps us keep fighting for better care, education, and equity for people with endometriosis.

🏆 The Ultimate Endo Kit winner is…
Christy Chamberlain! 🎉

Christy takes home an incredible prize pack including:
⭐ Oodie + slipper socks
⭐ TAP TENS machine – @tap.health
⭐ Pillow – @necks_best_thing
⭐ Elsolovers 12-panel heat wrap – @elsolovers
⭐ Endosooth cream + tea – @endosoothe
⭐ Mint Period Underwear 6-pack – @mintperiodunderwear
⭐ BeYou patch pack
⭐ Endo Diary – @maciemindful
⭐ Bloody Minded by Susie Ferguson
⭐ Sweet Disorder anti-fatigue sweets
⭐ Aromatherapy shower steamer
⭐ Tea flask – @betterteaco
⭐ EWA t-shirt + medicine pouch
⭐ Massage gun
⭐ Pill container
⭐ Moodie Hot Chocolate

✨ Our 10 amazing runner-up prize winners are:

Rebecca – Design Republique Microplush Robe + Endosooth Mini Balm

Sarah – Lounge Socks + Endosooth Mini Balm + Hush Lavender Wheat Pack

Christy – Endosooth Cream + Tea

Sophie – Mint Period Underwear (6-pack) + BeYou Patch Pack

Rose – Fraser Country Heated Throw Blanket

Amaya – Kosi Wrap Heat Pack (@kosi_au

Vanessa – Mint Period Underwear (6-pack) + Hot Water Bottle

Chelse – Oodie Sleep T-Shirt + Endo Diary + Pill Container

Maggie – Better Tea Co Hemp Tea + Reusable Tea Bag + Mug

Kara – Mint Period Underwear (6-pack) + BeYou Patch Pack

💛 Huge thanks to these incredible businesses for donating to our fundraiser and supporting our mahi:
@tap.health @necks_best_thing @elslovers @maciemindful @artisan_nz @mintperiodunderwear @betterteaco @endosoothe

Together we’re making a difference 🌼

#EndometriosisAwareness #EndoWarriorsAotearoa #Fundraiser #Gratitude #communitypower

Every name on this petition is a voice saying: we will not be silenced anymore.

Every story shared is proof of the harm caused by dismissal, gaslighting, and years of delay.
Every whānau broken by pain, every job lost, every child watching their parent suffer it’s all evidence that the system has failed.

For too long, endometriosis has been dismissed as “just bad periods.” For too long, women, girls, and those assigned female at birth have been told to cope, to push through, to stay quiet.

But this petition is proof we are not quiet anymore.
It is proof we are united, demanding guidelines that are clear, enforceable, trauma-informed, and equitable.

This is our moment. Don’t let it pass. Add your name, share it with your friends, and help us show decision-makers that we are not going away.

✍️ Sign the petition today.
Because every signature is one more voice they can’t ignore.
Link in Bio

#EndoPetitionAotearoa #MateKirikopu #WeDeserveBetter #EndoStories #endoawareness

"These sessions thoroughly support our Sexuality Education programme… Wellington Girls’ College wholeheartedly supports Endo-Warriors Aotearoa in their continued work to raise awareness, provide education, and promote inclusivity for all young people.”"

At Endo Warriors Aotearoa, we run FREE education classes on periods and endometriosis (mate kirikopu) & we have been doing this for a long time.

These workshops are about more than just knowledge, they’re about:
✨ Helping rangatahi understand their bodies and know when to reach out for help
✨ Breaking down the stigma and silence around periods
✨ Highlighting that endometriosis is not just a “period illness” it impacts the whole body and deserves real recognition

We’re proud to create safe, inclusive spaces where students can ask questions openly, feel respected, and leave with tools that support them well beyond the classroom.

But here’s the problem: youth voices are missing from our current national guidelines. Rangatahi deserve clear diagnostic timelines, red flags that aren’t ignored, and pathways that actually support them at school and beyond. They deserve guidelines that recognise different communities Māori, Pasifika, disabled, rural, and gender-diverse and ensure they are not left behind.

📣 Every class delivered is one step closer to a future where no young person is dismissed, silenced, or left in the dark about their health.

📣Support our mahi, share our posts, and help us keep bringing this education to schools for free. Together, we can change the conversation.

📣 Sign our petition today and add your voice to the call for updated national endometriosis guidelines. Together, we can shift the system.
LINK IN BIO

#EndoAwareness #PeriodEducation #FreeEducation #MateKirikopu #PeriodEquity #breakthestigma

The emotional side of endo
Endometriosis isn’t just physical. It’s emotional.

Yes, there’s the pain. But there’s also:
✨ The shame when you have to cancel.
✨ The guilt when your body says no.
✨ The heartbreak when you can’t play with your child.
✨ The worthlessness when you can’t even cook a meal for your whānau.
✨ The isolation of not being understood.

It looks like:
💧 Waking up already tired.
💧 Crying alone in the shower.
💧 Fighting to advocate for yourself when you’re at your most vulnerable.
💧 Not being believed — by doctors, employers, sometimes even whānau.
💧 Holding it together while you’re falling apart inside.

This is the reality for so many of us. And it’s not rare, it’s routine. That’s why the system has to change.

🖊 Sign the petition today and demand guidelines that actually protect us.
Because endometriosis is breaking lives, and silence will only break more.
Links In Bio

#EndometriosisAwareness #MateKirikopu #InvisibleIllness #ChronicPain #MentalHealthMatters #EndoPetitionNZ #WeDeserveBetter

The guidelines are just suggestions.
That’s what doctors are told. And that’s why so many people with endometriosis are still dismissed, denied referrals, or left in pain.

When guidelines aren’t mandatory, they don’t protect patients. They protect the system.
And the result? Years of misdiagnosis. Decades of gaslighting. Generations of people forced to beg for basic care.

We need more than suggestions. We need guidelines that are:
✨ Clear with real diagnostic timelines and referral pathways.
✨ Enforceable so doctors are held accountable, not patients left fighting.
✨ Trauma-informed because no one should be retraumatised while seeking help.
✨ Shaped by lived experience by those who actually know what it’s like to live with mate kirikopu.

Aotearoa deserves better. Our communities deserve better. We deserve better.

✍️ Sign the petition today link in bio
📢 Share it and help us demand change.

#EndoPetitionAotearoa #MedicalGaslighting #MateKirikopu #WeDeserveBetter #SystemicFailure #EndoPetitionNZ

We’re looking for a creative legend to help us bring our kaupapa to life on Reels + TikTok!

Endo Warriors Aotearoa is on a mission to change the system for women, girls, and those assigned female at birth living with endometriosis (mate kirikopu). Right now, our petition to review Aotearoa’s outdated guidelines is gaining momentum — and we need powerful, scroll-stopping content to keep it moving.

🎥 The role:
Create fun, engaging Reels + TikToks around endometriosis, our petition, and the stories that matter.
Think: myth-busting, storytelling, advocacy, and maybe the odd trending sound.

💸 The “pay”:
We can’t offer $$, but we can pay you in eternal gratitude, endless sparkly emojis ✨💛✨, and a koha as a thank-you for your mahi.

🙌 What you’ll get:
– A chance to make a real impact for thousands living with endo in Aotearoa
– Creative freedom (we’ll support with ideas + info)
– Being part of a passionate movement fighting for change

📩 Sound like you? Slide into our DMs
Help us show Aotearoa what living with endo really looks like and why it’s time for action.

#EndoWarriors #EndoPetitionNZ #MateKirikopu #EndoAwareness #EndoContentCreator #VolunteerWithUs #changethesystem

@meandosesbrewery is back with another quiz night for a cause!

Join them for fun, community, and raising koha to help us keep doing the work we do. Every quiz night supports our mahi across - Let’s fill the room.

Quiz dates: August, 19, 26
Bring your team, grab a drink, and help make menstrual equity happen

Tag someone you’re bringing to Tuesday night’s quiz then tell them to brush up on their trivia!

Thanks @meandosesbrewery for your support to EWA <3

#SupportLocal
#QuizForACause
#meandoseswellington
#endowarriorsaotearoa

Here’s what we’re fighting for:
• A full, independent review and rewrite of the outdated 2020 endometriosis (mate kirikopu) guidelines
• Official, enforceable guidelines adopted across the health system — not just suggestions
• Lived experience, youth voices, and Te Tiriti-based equity at the centre
• Clear diagnostic timelines, red flags, and escalation pathways
• Better Funded public access to excision surgery, pain management, mental health, and physio
• Real support for rangatahi, disabled, neurodivergent, Māori, gender-diverse, and rural communities who face even greater barriers to care
• Inclusive language and trauma-informed care baked into every step
The current guidelines are not working. They are vague, outdated, and non-binding. When people are waiting an average of 10 years for a diagnosis, that is not care, that is neglect. We deserve better.
🖊️ Sign the petition today
Insta- link in bio
https://our.actionstation.org.nz/petitions/people-with-endometriosis-deserve-better-demand-review-of-the-national-guidelines
🔖 Bookmark this post & send it to someone who needs to see it
#EndoPetitionAotearoa #UpdateTheGuidelines #WhatWeWant #EndoJustice #matekirikopumatters

350+ Year 9 students. One week. Thousands of conversations.

This week in Wellington, we delivered free Period & Endometriosis (mate kirikopu) education to over 350 Year 9 students because every young person deserves to understand their body without stigma or shame.

We know there’s still a huge stigma around periods, so we aim to break it wide open by teaching all the ins and outs of menstrual health, busting myths, and using inclusive language so every student feels seen.

Every student received:
✨ 2x period underwear
✨ 1x period cup or set of reusable pads
💦 And one lucky class scored period swim togs 🏊‍♀️

That’s over $10,000 worth of products gifted this week alongside vital education that helps youth recognise symptoms, seek help early, and know that endometriosis is not just a period or reproductive illness it’s a whole-body condition.

Right now, we’re calling for the national guidelines to be updated and part of that involves youth-centred guidelines so rangatahi don’t spend years being told their pain is “normal.”

Our petition calls for:
🔹 Early intervention triggers — clear criteria for when symptoms in youth should lead to investigation and specialist care
🔹 Age-appropriate pain education — so students know when pain isn’t normal
🔹 School-based support — flexible learning plans, safe spaces for pain management
🔹 Youth-friendly referral pathways — no unnecessary gatekeeping, faster access to care
🔹 Inclusive resources — tailored for Māori, Pasifika, disabled, neurodivergent, and gender-diverse youth
🔹 Youth and contraception — moving away from a one-size-fits-all approach that relies on hormonal contraception without informed consent, recognising that it does not treat endometriosis and may mask symptoms or delay diagnosis, and ensuring non-hormonal options are also available and publicly funded

Education changes lives. Updated guidelines could change thousands more.

📢 Sign the petition today link in bio
#PeriodEducation #EndometriosisAwareness #MateKirikopu #MenstrualEquity #PeriodPoverty #YouthRights #WholeBodyIllness #PetitionNZ #EndoWarriorsAotearoa

Australia’s 2025 guideline is world-class the “gold standard” for endometriosis care. If applied properly, it could be a game-changer for Aotearoa too.

But this suggested current proposal by other endo org, still leaves too many behind. There’s no funding for sonographer training, no workforce development, and no national ultrasound reporting standards. There’s also no clear commitment to enforceable standards or practical guidance for safe, inclusive care for Māori, Pasifika, disabled, and rainbow communities. Gender-diverse people remain invisible, despite facing some of the longest delays and greatest barriers to care.

Without these crucial elements, the “gold standard” will remain just glossy words on paper while those seeking g help with endometriosis continue to be failed.

We’ve seen this happen before big promises without the investment or accountability to back them up.

Our petition calls for real change: enforceable standards, mana taurite (equity)-focused care, clear diagnostic timelines, national ultrasound standards, proper pūtea (funding), and strong accountability so no one in Aotearoa has to fight alone for basic, timely care.

✍ Sign today and demand better: link in bio

photo by @radionewzealand read write up via their page.

#endometriosis #endometriosisnz #MateKirikopu #EndoPetitionNZ #EndoAwareness #endowarriorsaotearoa #GoldStandardOrBust #ChronicIllnessAdvocacy #ListenToUs #systemicchangenow

We just passed 1153 signatures.
That’s 1153 people demanding a health system that actually works for us.
1153 voices saying the outdated 2020 guidelines aren’t good enough.
1153 people standing up for earlier diagnosis, real treatment options, and care that reflects lived experience.
This petition is calling for the national endometriosis (mate kirikopu) guidelines to be:
✅ Reviewed and rewritten with lived experience at the centre
✅ Officially adopted and enforced across the health system
✅ Grounded in equity, te Tiriti, and clinical best practice
✅ Inclusive of youth, disabled, Māori, Pasifika, and gender-diverse communities
We’re not just signing we’re showing up, speaking out, and pushing for real, lasting change.

Can we get 5000?
📣 Share the petition. 📝 Tell your story. 📤 Email your MP- all links in bio

This is how we change the system together.
Let’s get to 2000 by the end of the day. Sign the petition today.

#EndoPetitionAotearoa #UpdateTheGuidelines #MateKirikopuMatters #WeWontBeIgnored #EndoCommunityPower

The Current Guidelines Don’t Protect Us
They are Outdated. Incomplete and Ignored.

The 2020 endometriosis guidelines are still what Aotearoa is working with and they are completely out of touch with what is actually needed. They are not a formal clinical guideline, so health providers can ignore them and many do. That means inconsistent care, bigger equity gaps, and far too many women, girls, and those assigned female at birth left suffering for years.

Here is what is missing:
❌ Youth-specific care
❌ Gender-inclusive language
❌ Trauma-informed approaches
❌ Accountability for delays
❌ Culturally safe models
❌ Disability recognition
❌ Plans for rural and underserved communities
❌ National ultrasound reporting standards
❌ Funding for sonographer training
❌ Clear diagnostic timelines and escalation steps
❌ Equity-focused services for Māori, Pasifika, disabled, takatāpui and gender-diverse communities
...and the list goes on.

We have reviewed them. We have rewritten what needs to change. Now we need your help to get them updated, formally written, and backed with funding so they actually work.

✍️ Sign the petition today- Link in bio
#EndoPetitionAotearoa #UpdateTheGuidelines #CareThatReflectsUs #EndoJusticeNZ #EndoReform

“I passed out from pain. They gave me Panadol and sent me home, no scans, gyno did not see me, no answers.”

If you’ve been to ED with endometriosis, you’ve probably heard something like this.

This is what medical dismissal looks like in Aotearoa.
It’s what happens when health professionals aren’t trained to recognise endometriosis, when vague guidelines don’t hold anyone accountable, and when you’re told it’s “Just your period” again and again.

This isn’t rare. It’s routine. And it’s not good enough.

We’re calling for updated guidelines that are clear, trauma-informed, inclusive, and actually followed so no one else is left to suffer like this.

🖊 Sign the petition today
📢 Share your own story and let others know they’re not alone
📩 Email your MP (templates available)
All the links in our bio

#EndoStories #EndoPetitionAotearoa #ListenToUs #MateKirikopu #EndoPetitionNZ #EndoIsReal #SystemicNeglect #MedicalGaslighting #wedeservebetter

Living with endometriosis isn’t just physical it’s emotional.

It’s being dismissed by doctors.
It’s the isolation of not being believed.
It’s crying in the car after another appointment that went nowhere.
It’s panic attacks before scans.
It’s depression from being told “everything’s normal.”
It’s the exhaustion of pretending you're okay when you're not.

Endo affects your mind, your mood, your whole sense of self.
And yet, there’s almost no support for the mental health impact.

📚 Research shows people with endometriosis are twice as likely to experience anxiety and depression as those without.
(Journal of Psychosomatic Obstetrics & Gynaecology, 2017)

This petition is about changing that.
It’s about care that sees us as whole people not just symptoms.

🖊️ Sign the petition. Share it. Stand with us.-Link in bio

Like this post if you agree this needs to change

#EndoMentalHealth #EndoPetitionAotearoa #ChronicPainStruggles #WeDeserveBetter #EndometriosisAwareness #MentalHealthMatters #EndoIsReal #EndoSupport

Pain when going to the toilet is one of the lesser-talked-about symptoms of endometriosis.

Bowel endometriosis can cause sharp rectal pain, cramping before or after bowel movements, constipation, diarrhoea, and even bleeding during your period.

For some, it feels like passing glass or knives
For others, the pain causes them to avoid eating or restrict what they eat
This symptom is often misdiagnosed as IBS
But if it follows a pattern with your cycle, endometriosis might be the cause

Have you experienced bowel pain with your period
Let us know what helped or what you wish you’d known sooner

#EndoAndBowelPain
#EndoSymptoms
#CycleLinkedPain
#EndometriosisAwareness
#ChronicPainNZ

You’ve signed the petition now let’s take it next level.
It takes 5 mins to email your MP using our copy-paste template.

No stress.
No guessing.
Just your voice, sent straight to the people in power.

This is how we get endometriosis care taken seriously.
This is how we push for updated, evidence-based guidelines.
This is how we show them we’re done being ignored.

Find the email template + MP list via link in bio

They can ignore a petition.
They can’t ignore thousands of emails.

Copy. Paste. Send. Make noise.

#EndoPetitionAotearoa
#EmailYourMP
#WeDeserveBetter
#ChronicPainJustice
#EndoRightsNow
#endowarriorsaotearoa

“Push through the pain” is not a care plan.
Yet this is what so many rangatahi are told when they experience severe period pain even when that pain is so intense it can mean vomiting, fainting, or missing days of school.

No one should be told at 14 that this is “just part of having a period” or something they have to learn to live with. These messages leave young people feeling unheard, unsupported, and often without the medical help they desperately need.

Endometriosis is not just a period illness, it is a whole-body illness that can affect the bladder, bowel, immune system, and more.

Early education and support are vital to reduce years of suffering and delayed diagnosis.

This is why we go into schools and teach period and endometriosis education, so young people know what each means and understand the importance of the difference between the two.

We need youth-specific support in schools. We need spaces where young people can rest without shame, and clear pathways to diagnosis and treatment.

It’s time to stop dismissing pain and start supporting our youth.

Sign the petition today
https://our.actionstation.org.nz/petitions/people-with-endometriosis-deserve-better-demand-review-of-the-national-guidelines

#EndoPetitionNZ #MateKirikopu #EndoInSchools #YouthDeserveBetter #periodpositiveschools

Endometriosis: Not Just a Pelvic or Reproductive Illness
Endometriosis is often misunderstood as simply a “period issue,” but it's much more than that and deserves a whole‐body conversation.

A Systemic Illness, Not a Local One
While endometriosis does involve tissue growing outside the uterus, research now shows it’s a chronic, systemic disease, not just a gynaecological condition. It triggers widespread inflammation, affects metabolism, the immune system, even gene expression in the brain leading to fatigue, mood disorders, migraines, and more.

Beyond the Pelvis
Yes, endo can affect the ovaries, bowel, bladder, or pelvis, but it can also appear in the lungs, diaphragm and so much more. Its reach isn’t limited.

There Is No Cure! Not Even Hysterectomy
Removing the uterus through a hysterectomy doesn’t cure endometriosis, especially because the disease exists beyond the uterus. Pain relief is not guaranteed, and symptoms often return or persist.

It’s time to break the myths, push for better research, and ensure whole-body care for everyone with endometriosis.

Sign the petition today to demand better care and recognition. Link in bio.

#EndoPetitionNZ #MateKirikopu #EndometriosisAwareness #WholeBodyIllness #EndoFacts #EndoEducation #YouthDeserveBetter #EndoInSchools

“Too young for endo.”
“Just take Panadol.”
“No inclusive forms.”
“Pain dismissed for a decade.”
These are the words that women, girls, and those assigned female at birth hear every day from schools, from doctors, from the system that’s supposed to care for us.

It’s no wonder so many of us are suffering in silence.
Something’s got to give.
We’re fighting for better care, earlier diagnosis, inclusive services, and national guidelines that actually work.

Sign the petition to demand change.
🔗 Link in bio

#endopetitionnz #MateKirikop #endometriosisawareness #endometriosis #endowarrior #GenderInclusiveCare #YouthHealth #systemicchange #endoisreal #petitionforchange #medicalgaslighting

The current endometriosis guidelines in Aotearoa haven’t been updated since 2020.
In that time, thousands more have been misdiagnosed, dismissed, and left to suffer all because the system refuses to keep up with reality.

Here’s what the outdated guidelines still fail to address:
🕰️ No clear timelines for diagnosis
🚫 No accountability for doctors
💊 Hormones pushed as a one-size-fits-all fix
🧠 No trauma-informed approach
❌ No youth-specific care pathways
🌈 No inclusive language for gender-diverse or intersex people
🩺 No meaningful focus on Māori, Pasifika, or disabled experiences
📉 No requirement for multidisciplinary care
📚 No education for schools or workplaces
⚖️ No way to measure if care is actually improving
And the list goes on.

These gaps lead to misdiagnosis.
To medical gaslighting.
To delayed treatment.
To lifelong trauma.
We’ve reviewed the guidelines. We’ve written what needs to change.
Now we need the Government to act.
🖊️ Sign the petition to demand care that reflects lived experience and evidence-based practice, You can also review the proposed updated guidelines and share your feedback, Links in Bio

#EndoPetitionAotearoa #UpdateTheGuidelines #EndometriosisAwareness #EndoInAotearoa #EndoWarriorsAotearoa #ChronicPainNZ #WeDeserveBetter #EndoEquity #OutdatedIsUnacceptable

MP Benjamin Doyle @benjamin4kirikiriroa (they/them) is the official Parliamentary sponsor of our petition to review and rewrite Aotearoa’s outdated endometriosis (mate kirikopu) guidelines.

In July, they stood up in Parliament and named what too many of us have faced for years:

“People in desperate chronic pain are being rejected by the healthcare system… There is a dearth of meaningful investment in research, infrastructure, training, and care that has been called on by people with endometriosis for decades.”
— MP Benjamin Doyle

They named the medical misogyny.
They called out the systemic neglect.
They stood with us and it was powerful.

“I had all the feelings. I was standing in my lounge yelling ‘YES! You tell them!’ I was in tears real, gut-level tears from finally feeling seen. To hear someone in Parliament speak our truth so clearly, That’s something I’ve never seen before. And honestly I was also shouting, ‘DO YOU HEAR THAT, DOCTORS!’ Because so many of us have sat in clinics, dismissed and disbelieved and now our reality is on the record in the halls of power. That matters.”- Yessenia Sandoval, Founder of Endo Warriors Aotearoa

And the community response was overwhelming:
“Autoko! Finally we have a voice in Parliament saying what needs to be said. Endo destroyed my life… We deserve so much better.”
“I cried. I felt seen. Thank you.”
“Thank you for bringing attention to this! Myself and other wahine have been gaslit and denied a basic referral for half of our diagnosis journey.”
“Important work. Thank you for being an advocate.”

We now have a voice inside Parliament and it’s time to make sure that voice is backed by action.

🖊️ Sign the petition
📢 Share this post
📩 Email your MP (templates available)
All the links you need are in our bio

Let’s keep pushing. Let’s make this moment count and If you haven’t seen Benjamin’s speech yet, check out our pinned post and give it a watch.

#EndoPetitionNZ #MateKirikopu #BenjaminDoyle #EndoInParliament #EndoWarriors #MedicalGaslighting #HealthEquity #WeDeserveBetter #ParliamentVoices #SystemicChange #EndometriosisAwareness #endoisreal

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@endowarriorsaotearoa

"It was on this page that I first became aware of the symptoms I was living with most of my life, I had no idea what endometriosis was until I saw the creator of this page share on her personal page about her Endometriosis Journey so I decided to check the page out, A few months later I was rushed to Hospital and was diagnosed with Mild Endometriosis, I am grateful to be part of this Amazing Support Group, This page has made me more aware of my illness and has given me the knowledge and tools to use when dealing with my GP, Gynaecologist and even trying to explain to my Family and Friends what Endometriosis is, I feel empowered and don't feel I'm on this Journey alone, I am so grateful for Endo Warriors Aotearoa"

Testimonials

"I just wanted to message and say thank you for everything you do. I struggled with endo for years and I wish I had something like this page while I was going through it all. I felt so alone and like no one was experiencing the pain that I was, so I am so glad that others have this page. please let me know if I can help in any way, I would be honoured to support such an amazing person ❤"

"Thanks to Instagram accounts like yours I would have not learnt about the ins and outs of endometriosis. Reading your guy's stuff and relating to it made me realise I might have endo. Luckily I advocated for myself and now I'm just waiting for my lab results."

Supporting Women, Girls & Those Assigned Female at Birth Living with Endometriosis

Challenging stigma and system gaps with free education, support, and community action.

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