A letter to my chronic conditions.

By Casey

A letter to my chronic conditions.

You have taken so much from me, you have caused me so much pain, tears, anger, and stress. I don’t even know where to begin.

How can you cause so much frustration, agony, and hurt, yet you do not have a cure and can come and go as you please? What did I do to deserve this life? This pain? This stress? This uncertainty, not knowing what is going on within?

The endless suffering from symptoms you wouldn’t even know I had by looking at me from the outside. Every morning I wake up and get ready for the day.. whether that be making my lunch and getting changed to go into work or getting up to do the shopping, cleaning etc. Little did you know, through out the night I wake countless times, thrust around in pain, dose up on several pain killers, lay down and cry, asking “ why me “. You would never guess Id spend the night curled in a ball as the cramps feel like a hot dagger, piercing in and out continuously. You would never guess my insides feel like they are wrapped in barbed wire, like something is pushing/pulling my uterus and that it is being squeezed as if it were a stress ball, all at the same time. You would never guess id spend days on the couch in so much pain using a hot water bottle that had caused burns to my skin on my stomach, just to distract me in the slightest from the agonising pain.

Doesn’t that say a lot?

So many people have their dreams, careers, and life put on hold because of you. You are selfish. You have sucked so much life out of me, I wouldn’t even know where to start about that. You just take, take, take. All you do is TAKE. You have taken so much from me, and others that are out there suffering.

How is that fair?

Dealing with heavy periods, long periods, pelvic pain, extreme cramps, food intolerance’s, IBS symptoms, fatigue, pain with sex, severe bloating, frequent urination, painful urination, insomnia, rectal bleeding, feelings of UTI, back pain, leg pain, lightening crotch, nausea, fertility issues and so many more things that i have listed above.

WE ARE TIRED. Having a chronic condition is EXHAUSTING. Let alone having multiple all at once. We are constantly fighting to be validated, believed, heard, listened to, understood, and most of all HELPED.

Take a look at this example below.

This is the number of PubMed articles on diseases with similar occurrence rates. ( as of august 2024.)

- Diabetes: 999,145

- Asthma: 225,703

- Endometriosis: 35,654

- Adenomyosis: 4,084

Look at those numbers. They all have similar occurrence rates but yet the numbers are COMPLETELY different in what's actually getting addressed.

Isn’t that so wrong??

Why doesn’t Endometriosis and Adenomyosis get the same recognition and awareness??? Why do people like me get left to suffer day in and day out due to “ lack of study “ ??

It’s about time that changed.

💛💛💛💛💛