My Story

This community was created in the early hours of one Sunday morning back in Feb 2020 when I was in so much pain, had been in and out of the hospital, was not being listened to and was tired of feeling alone, tired of not being listened to, I wanted others to know they are not alone I wanted to offer help and support to others like me.

It started as a Wellington group but very fast became an NZ group. I have/ had endometriosis, PCOS, Infertility, adhesions etc for almost 20 years and like most, it has not been an easy ride, it’s like a roller-coaster you can’t get off. More recently(the last 2 years) I have been diagnosed with other illnesses and am under various specialists at the hospital to try and find answers and get to a point of being more manageable. 

Some background on my journey, I have had multiple surgeries over the years to remove my endo, fare to many pregnancy losses, a lot of hospital time and even though I have had a hysterectomy to remove adenomyosis,  I still have endo, along with other chronic pain illnesses.

I am a warrior like you I know what it is like to have to fight for answers, not being taken seriously. I’ve been where you are, I am where you are, and I want to help people as much as I can. I want you to know you are not alone. I have been at a point where I had my period for 6+  months and struggled to afford period items, and doctors’ appointments, So I created this group to support others, to bring others together, Our illness may be invisible, but we are not.

 Yessenia x